CMT United Kingdom is the UK’s national support group for people affected by Charcot-Marie-Tooth Disease (CMT) and their families and carers. CMT is a hereditary, slowly progressive, neuromuscular condition, discovered in 1886 by two French neurologists, Jean-Martin Charcot and Pierre Marie and an English neurologist, Howard Henry Tooth. The condition is also known as Hereditary Motor and Sensory Neuropathy (HMSN) and occasionally, Peroneal Muscular Atrophy. CMT United Kingdom was formed in 1986. Membership is approximately 1600 and increasing all the time. Most members are in the main areas of population such as the Home Counties, the Midlands and parts of the North, although we do have members literally from Land’s End to the northern tip of Scotland. We offer a service of support, advice and information and people can access these services via phone, email or by post, or by attending one of our national or regional conferences. Our main means of keeping in touch with you is through a magazine, ComMenT, which is published three times per year. We also send a monthly “e-ComMenT” to people with email addresses, which contains extra news and information, reminders, links to surveys etc. An annual Conference is held in April each year in association with our Annual General Meeting. These are held in suitable, accessible hotels around the country. We try to have an assortment of relevant speakers at each Conference to help educate us in coping and managing all the problems that you might come across with a condition like CMT. We also hold a Regional Conference in Scotland every other year for people for whom the distances to the main Conference would be too great. Much of our time is spent disseminating information about the condition and the support group. Information is sent to professionals, voluntary organisations, databases and libraries – anywhere where information is held on medical conditions and/or support groups. In particular, we are trying to ensure that our name is known amongst medical professionals – in the past we’ve mailed all neurologists, GP practices etc, and we also attend some professional conferences when funds allow. CMT United Kingdom is run by a Board of Trustees of up to 10 people, the majority of whom have CMT, so we do truly understand the issues involved in living with this condition. The organisation is constantly changing and evolving to better meet the needs of people like yourself. We now have three staff, one of whom is a full-time Fundraising Manager, who has specific responsibility for raising funds to meet our targets detailed in our Strategic Plan for the next five years, which, in a nutshell, involves raising £2,000,000 to further our work for people with CMT and to provide grants to further research into CMT.